A special contribution by guest blogger Melissa Demand
Melissa shared her story via our Stories of Hope questionnaire.
How has your child exceeded your expectations?
We were lucky that in NICU and through our geneticist, we only heard about what he wouldn’t be able to do physically. They really had no idea what was going on. He was so small and weak. Every day we’d concentrate on how much he ate or doing his physical therapy exercises. We didn’t know what would happen when we left that hospital. We didn’t have a PWS diagnosis.
It wasn’t until Kemett was 3 months old that we found out he had PWS. We were relieved that this was what is was, compared to other diagnoses it could have been. Kemett is an amazing boy. He is only 3½, but he is so smart, loves to read, is funny, loving and kind. He goes to a typical preschool and is keeping up with his peers — sometimes is even faster than them. We are so proud of the person he is becoming.
Topics: Stories of Hope