PWS Awareness Month >
May 2017

"I Believe ..."

PWS is the most common genetic cause of life-threatening childhood obesity. This May, during Prader-Willi Syndrome Awareness Month, people around the world who are affected by PWS are joining together to say: We believe. We believe in each other, so we're sharing our stories of hope. We believe in our communities, so we're raising awareness of PWS and how people can help. We believe research can change the future for our children, so we're fundraising to support a $26M 5-year plan to develop new treatments for PWS. In honor of Prader-Willi Syndrome Awareness Month, we ask you to show you believe in a positive future for all people with PWS by clicking one of the links below. By fundraising, donating, and spreading the word, you can help make that future possible.



With a One Small Step page,
it's easy to reach out to family and friends!



Support our 5-year research plan to develop new treatments for PWS.



Post our beautiful graphics on social media and
raise #PWSawareness!

Latest Post

Mom's Advice for PWS Parents: 'Watch Your Baby Fly!'

By guest blogger Jennifer Terranova

moms-advice-for-pws-parents-watch-your-baby-fly-3.jpgWhen my son's diagnosis of Prader-Willi syndrome was confirmed, all of our dreams of what we expected our third child to be were gone. But even though it took a little while to wrap our brains around his diagnosis, at some point we decided that no, our little boy’s life will not be written according to scientific websites and textbooks. We decided to dream big dreams for our little boy. Nothing will stop him, if we believe it, and we needed to instill that in him from the beginning, as we instilled the same in our oldest son and our daughter.


Special Events

3 Things To Do This Month 

  • Ditch your lunch. Choose one day to skip your lunch in honor of your loved one with PWS. Ask your friends, family and co-workers to join you and donate what they would have spent on lunch to PWS research.
  • Put out a donation jar. Ask your local businesses to put out a collection jar or donate a portion of their proceeds to PWS research. Use this flyer.
  • Educate. Do a presentation at your child’s school or a group you belong to! Use this slide deck.

Need some more ideas to help you get started? Watch this short webinar

Featured Video


Find more PWS resources here!

Customize Your Facebook Pic!


With our Facebook picture generator, you can have your very own profile pic customized with a photo of with your beautiful child. Spread a message of hope for PWS Awareness Month: get your picture here!