PWS is the most common genetic cause of life-threatening childhood obesity. This May, during Prader-Willi Syndrome Awareness Month, people around the world who are affected by PWS are joining together to say: We believe. We believe in each other, so we're sharing our stories of hope. We believe in our communities, so we're raising awareness of PWS and how people can help. We believe research can change the future for our children, so we're fundraising to support a $26M 5-year plan to develop new treatments for PWS. In honor of Prader-Willi Syndrome Awareness Month, we ask you to show you believe in a positive future for all people with PWS by clicking one of the links below. By fundraising, donating, and spreading the word, you can help make that future possible.
By guest blogger Jennifer Terranova
When my son's diagnosis of Prader-Willi syndrome was confirmed, all of our dreams of what we expected our third child to be were gone. But even though it took a little while to wrap our brains around his diagnosis, at some point we decided that no, our little boy’s life will not be written according to scientific websites and textbooks. We decided to dream big dreams for our little boy. Nothing will stop him, if we believe it, and we needed to instill that in him from the beginning, as we instilled the same in our oldest son and our daughter.
Need some more ideas to help you get started? Watch this short webinar.
With our Facebook picture generator, you can have your very own profile pic customized with a photo of with your beautiful child. Spread a message of hope for PWS Awareness Month: get your picture here!