A special contribution by Brian Kalasek
My introduction to PWS probably started very similar to other PWS families. We were admitted to the NICU on day 3 of Paxton’s life. He hadn’t really “woken up” yet, but the nurses and doctors up to that point didn’t seem too concerned. They kept telling us he had WWBS, Wimpy White Boy Syndrome. Funny I thought, I’ve been fighting that for the past 36 years myself with limited success. By the end of the day 3 though everything had changed, we went from what we thought was a healthy little boy in the morning to total despair by dinner time.
Topics: Stories of Hope